This is a continuation of my story of infant loss, from 4 years ago. If you’d like to read from the beginning, you can start with Finding Out There Is Something Wrong With My Baby.
At my last appointment with the Perinatologist, I received my amniocentesis results, which stated that my baby girl WAS NOT a Trisomy 18 or Trisomy 13 baby. This was more than a huge relief because it meant that she COULD live! Any sign of hope during this very challenging pregnancy was Godsent. The next step was for me to make an appointment with the Pediatric Cardiologist, for my baby. I didn’t even know that cardiologists saw pregnant women, for their babies.
I was nervous going into the appointment, but my little girl’s cardiologist was about the kindest doctor I have ever met! He was very sweet, patient, and explained everything he saw to me. When dealing with something so serious and tender already, it is so helpful when the doctors don’t keep you in the dark. He broke everything down into terms that I could understand. After the ultrasound, we came to the conclusion that my baby had a ventricular septal defect. This is a defect in the ventricular septum, which is the wall dividing the left and right ventricles of the heart. Of course, anything wrong with the heart can be very scary, but it sounded like this was very treatable and not the worst of our worries.
Because my baby obviously had a lot of problems, he thought she would possibly need surgery, and maybe more than one. However, the surgery wouldn’t need to happen right after birth. The doctor would keep a close eye on her after birth, and monitor her, to see if the hole would close on it’s own. If the hole needed to be repaired, then it would have to be done within the first year of life. This I could manage. One issue down and many more to go! Because ultrasound is not 100% accurate, then a lot of the deformities and problems that the doctors thought they saw in my baby, we just had to wait until she was born, to see just how severe they all were.
At this point, I was scared for my baby to have to have surgery, but with all of the scares and problems that we had heard to date, this was OKAY. After a couple of weeks, I visited this wonderful Pediatric Cardiologist again, for a follow-up, and to check on my little girl. Things were about the same – we just had to wait and see how her heart handled this hole, after she was born. No specialty doctor appointments scheduled, and just had to wait. I saw the perinatologists about every two weeks, until about 26 weeks, when I went into pre-term labor. That will be my next post. Sigh…
My next post is up: An Ambulance Ride and A Week In The Hospital, On Bed Rest.